Kinkajou: What did they teach you about fibromyalgia in medical school, Dr Xxxxx?
Dr Xxxxx: Nothing except to heap ridicule on the diagnosis. We were taught that fibromyalgia sufferers are malingerers or psychiatrically ill. There are no blood tests to confirm the presence or absence of the condition. In fact , many doctors would argue that it even exists. "I am a lot more sympathetic myself".
Erasmus: Giving its victims , the benefit of a doubt, you would have to say that Fibromyalgia is indeed a widely known but little understood condition or syndrome.
Dr Xxxxx, tell us what you know regarding fibromyalgia. Do you really think that fibromyalgia is just another manifestation of Paill Spectrum?
Dr Xxxxx: Fibromyalgia is often diagnosed when a Rheumatologist ( a medical specialist), cannot confirm the presence of a classical autoimmune disorder such as SLE (Lupus) or Rheumatoid, but when there is obviously something wrong with the patient. (The classical autoimmune diseases are collectively also known as Connective Tissue diseases).The significance of symptoms of fibromyalgia under the Paill Spectrum model is that the aches and pains in the fibromyalgia syndrome represent one of the symptom clusters
(tendon aches and pains, muscle aches) that are characteristic of the Paill Spectrum Infection. However , there is much more to consider.
Typical symptoms of fibromyalgia include: Pain in muscles and tendons,tiredness, chronic fatigue and being tired after exercise. The Paill Spectrum model of the Fibromyalgia Syndrome would add symptoms such as sweaty hands, dizziness, or loss of balance, depression and memory loss. These symptoms may be variably present. Prolonged tiredness after exercise is a characteristic Paill Spectrum syndrome.
Most doctors have heard of the Fibromyalgia syndrome but would have little knowledge of how to diagnose or treat the condition. In fact, many doctors would doubt that the syndrome even exists. The Paill Spectrum model offers a new approach to treatment of Fibromyalgia that does not involve steroids or cytotoxic medications such as Methotrexate. The Paill Spectrum model suggests that blood tests can indeed be used to diagnose and treat the condition.
Erasmus: So what treatments would you recommend?
Dr Xxxxx : There are many different layers of possible treatments. Even food and supplements used appropriately : doing the right thing for the right reason can make a huge difference. Herbal medications are useful. Antibiotics can be useful and critical but should never be considered as an "end all" answer to treatment. Strangely even cytotoxic medications such as methotrexate and other drugs can make a substantial difference, if used in the right timings and combinations for the right reasons.
Fibromyalgia is a medical condition or syndrome that many doctors do not agree even exists. It is often used as a diagnosis when the doctor believes there really is something wrong with the patient, but is unable to find anything to confirm their opinion in the blood test investigations.
Kinkajou: These comments are interesting, but how does the Paill Spectrum model give you a different outlook on this condition?
Dr Xxxxx: There are a number of other basic symptoms which the Paill Spectrum Model of Fibromyalgia predicts, in contrast to the standard medical model of the disease:
Dr Xxxxx : I think billions of dollars are spent on the pursuit of the truths, for the furtherance of science and knowledge and in the hope of finding a cure. Trillions are spent on a range of treatments including psychological therapies.Dr AXxxxx: Only an idiot would treat a serious physical disease with medicines that work on the "psychology" of the ill people. I would love to see someone cured of the flu or HIV because someone gave them a good talking to. These treating idiot doctors can't be reasoned with as well. They know the answers even when they have no idea. They don't know the limits of their own knowledge and understanding. Still it is gratifying to see how much money effort and time is spent chasing some of the most misguided advice in the Galaxy. To label a human as a malingerer or even a liar is to fail to grasp the essence of what it is to be a human. Humans are cooperative and helpful and seek to please. Where a human acts ill and foolish, or exhibits abnormal behaviour, irritability , anger or poor judgement, there is a reason.
Dr Xxxxx: A Paill Spectrum reason, I believe.Dr AXxxxx: Giving an opinion on the obverse, telling these sick people that's it's all in their head is actually true to some extent. Unfortunately, it's a real disease cooking off their neurones until they lose the ability to speak, to think and to wipe their own bums. I don't think the Paill Organism responds to a good talking to. Only an idiot would be suborned by the thought that it's all imaginary and in your head. It's actually ,very real and very much in your head.
Dr Xxxxx: (again)
Let's discuss Connective Tissue Disease, Immune or Inflammatory Screening Blood Tests in Paill Spectrum Fibromyalgia
The name Fibromyalgia is often used by Rheumatologists, when the patient has some type of soft tissue aches and pains, but all the standard screening rheumatological tests are negative.
These include tests such as:
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There are a host of other tissue auto antibodies. They are often used to exclude specific diseases or tissue specific autoimmune diseases, rather than as a screen for multi-tissue autoimmune diseases. Lupus is perhaps one of the more common syndromes that doctors try to exclude when assessing the symptoms and signs of fibromyalgia.
Back To Fibromyalgia Top 8-|
The key features of the Connective Tissue disease involve: arthritis and synovitis as well as vasculitis. Joints and organs like the kidneys are particularly affected. :-/ That's why it is so important to diagnose these conditions as a great deal of damage can be prevented if treatment is instituted. Arthritis and synovitis are easy to diagnose. Where blood tests are negative, a nuclear bone scan will reveal the inflammation readily enough, if the affected area is big enough. Vasculitis (and little microscopic foci of inflammation) are much more insidious conditions. The abnormal areas are too small to show up on most imaging tests. Most blood tests are not helpful. Tests for vasculitis usually fail to show any positive result and there is no obvious cause for the observed symptom. Doctors normally reassure their patients there is nothing wrong. Realistically, I agree, there does appear to be nothing wrong. :-> Back To Fibromyalgia Top>
Dr AXxxxx: The very concept of "autoimmunity" is the devil's work in my opinion. The immune system has evolved over billions of years with the imperative that every mistake is death. Strange that humans alone amongst so many species on this planet should suffer from "errant immunity " in such numbers. For example, it appears to me that the presence of nuclear antibodies may actually reflect immunity to the nuclear materials found in invading macrobiotic organisms.
Goo: What is a macrobiotic organism, Dr AXxxxx?
Dr AXxxxx: Goo, I did not realise you were listening. A macrobiotic organism is probably best described as an invading little creature . An organism that actually represents not a "microbial" life form, but an actual multicellular life form. A creature that contains many cells, tissues and even organs.Goo: Why do humans get infested with these things?
Dr AXxxxx; I am afraid Goo, that all mammals may to some extent be infested with these life forms. In most circumstances an effective and active immune response reduces damage to the host to a minimum. This makes diagnosis very hard, because there's not much to find, and on which to base a diagnosis.
There are other considerations.
CENSORED "ref AX1101" by order of “Frobisher” authorised by “The Commandant”.
Goo : A complex situation indeed. It worries me to think that something is using me as a food source.
Dr AXxxxx: It will worry you even more, if you do nothing to control the progress of the illness. As I have stated before, Paill Spectrum may be a horrific illness, but at the same time you can appreciate its deadliness, efficiency and stealth. Beauty in technical specifications , I would say.
Kinkajou: Back to Fibromyalgia. So, Dr Xxxxx, what is wrong with our current view of Fibromyalgia and Autoimmune Disease?.
The current medical model underlying all these conditions states that these conditions arise because the body has developed an immune response inappropriately against its own tissues. This needs to be suppressed. Indeed steroids and cytotoxic medications are often used in the treatment of fibromyalgic and autoimmune disease.
The Paill Spectrum model implies that an appropriate immune response develops to foreign antigen either directly or where this foreign antigen attaches (as a “hapten”) to normal tissues. Auto-antibodies probably are not a real feature of the disease burden in human populations. Antibodies target non-self antigens. These may be Paill Spectrum antigens.
CENSORED "ref AX1102" by order of “Frobisher” authorised by “The Commandant”. I also feel there is merit in Dr AXxxxx's intimation that macrobiotics are involved. The infection situation is however quite complex and there is more than just macrobiotics involved.
. The Paill Spectrum model predicts that treating people with steroids or cytotoxics will suppress the immune response and result in a temporary reduction in tissue inflammation with a reduction of patient symptoms. These agents may also be useful, but not for the reasons we believe. Unfortunately, the infection continues. Most doctors, who use these types of treatments on their patients, find to their surprise that every 3 – 9 months the dose of the immune suppressive agents needs to be increased as the symptoms return. They then say that the condition must be getting worse. In fact due to the immune suppression helping the infection along, they will eventually need to increase the dose.
There is a natural cap on the process. Either the antigen load increases sufficiently to cause a breakthrough immune flare with germ destruction or the pain conducting nerves are exterminated by the body’s immune response with consequent reduction in patient symptoms.
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The time period over which the clinical scenario is played out is also far too long for the average doctor to remember the clinical symptoms occurring and to allow the doctor to track the progression of the disease process over time. People forget. Doctors forget too. Paill Spectrum helps this process all too much. Once you are diagnosed, true or not, you become labelled and the path of your life follows the ancient rut.
(Dr AXxxxx: mainly because the medical treatment may eventually become responsible
for many of the illness symptoms that people complain of.)
Dr Xxxxx: You are a cynical man Dr AXxxxx! One further comment. There is reason to believe that cytotoxic and immune medications actually work in quite a different fashion to what most doctors believe. They are not so much immunosuppressant as disease modifying. Perhaps we should focus on the medical explanation rather than the reality of response being the point of misunderstanding.
Dr AXxxxx: Ah! I finally begin to see wisdom in a mammal.
The Paill Spectrum model of disease as developed by Dr. Xxxxx, advises extreme care in introducing Paill Spectrum therapy in autoimmune conditions. For example, he has seen one patient with Myasthenia Gravis where the Paill Spectrum type therapy is causing a prolonged steady antibody titre fall in the acetyl-choline receptor antibody titres. However, it is not safe to stop the immune suppressants as the antibody titre flare which is likely to follow, will cause a marked worsening of the myasthenia symptoms.
Treatment becomes a balance of controlling the underlying Paill Spectrum infective process as well ensuring the immune process perhaps responsible for causing the acetylcholine receptor antibodies to form, is gently suppressed until the Paill Spectrum antigen load falls sufficiently to allow the immune suppressive therapy to be reduced. Back To Fibromyalgia Top
Dr Xxxxx: Unfortunately, there is a lot more complexity in the involvement of immune processes in the causation of autoimmune diseases. While a steroid cytotoxic protocol may be useful, the Paill Spectrum Plus model actually predicts a number of layers of issues need to be addressed in treatment.CENSORED "ref AX1103" by order of “Frobisher” authorised by “The Commandant”.
This is not meant to be an exhaustive list of the miseries that occur in Paill Spectrum Fibromyalgia, merely a representative list. Back To Fibromyalgia Top
The Paill Spectrum model as pioneered by Dr. Xxxxx states that Fibromyalgia and possibly some other autoimmune illnesses are caused at least to some extent by infection with the Paill Spectrum organism.CENSORED "ref AX1104" by order of “Frobisher” authorised by “The Commandant”.
These other symptoms will also improve subtly and slowly but definitely with Paill Spectrum treatment.
Tissue pain is very difficult to eradicate with anything except maximal Paill Spectrum treatment. It also tends to recur three to nine months after cessation of antibiotic therapy. The Paill Spectrum model of disease as developed by Dr. Xxxxx relates that the Fibromyalgia group of patients has a generally poorer response to nutritional therapy than most of the Paill Spectrum groups.
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It is critical to treat people with effective therapy, not just symptomatic medication, or drugs. Medicine for “symptoms” does not change the progress of the disease.
Cytotoxic Medications are often used. This includes medications such as:
These medications appear to give good symptomatic relief,
but in the long-term the underlying Paill Spectrum disorder will flare
over three to nine months. The rationale for the long term constant usage of these medications also needs to be considered. The Paill Spectrum model would suggest that long term constant usage of cytotoxic medications causes more problems than it cures.
Dr AXxxxx: A person with whom I was talking once summarised the situation with remarkable clarity. How is it that you can improve the symptoms caused by an infectious organism with immunosuppressant or cytotoxic medications. It becomes obvious that the real situation is quite complex.
Dr Xxxxx: The Paill Spectrum model of disease I developed , does not “blanket condemn the use of cytotoxics. It merely suggests strongly that these medications are used for specific indications to achieve specific clinical aims with definite clinical goals. Where there is an immune (or in the classical model Autoimmune) response complicating PaillSpectrum infection, these medications may in fact be beneficial to symptoms control and disease control. Where the disease process is due to Paill Spectrum, treatment may give temporary relief, but exacerbate the condition long term.
There will be a point however, at which "help" becomes "hinder".
Dr. Xxxxx states that in complex circumstances,
where more than one pathological process is occurring,
treatment compromises will need to be made to achieve the best outcome for the patient.
The mainstay of treatment is constant monitoring
and achieving definite clinical goals or blood test goals
before moving on to the next stage of treatment or therapy. :- l]
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What about people who are just tired, not achy or full of pains?
>>Dr AXxxxx : Haven't you fools been listening. Paill Spectrum has many symptoms and presents in many ways. It is one of the most pleasingly lethal organisms and its symptoms are often subdued. Make the diagnosis when you can with what you can find. Paill Spectrum is stealthy. Many patients would not even know they are ill, even if reduced to 'post literate vegetables' drooling and pooing in some nursing home bed somewhere.
Goo : the picture you paint is eerily disgusting. Even a lowly mammal like myself feels sorry for humans.
CENSORED "ref AX1105" by order of “Frobisher” authorised by “The Commandant”.
Dr AXxxxx: Don't be so smug , Goo. If doctors can't recognise these symptoms in patients, they are worthless fools not worth helping.
CENSORED "ref AX1106" by order of “Frobisher” authorised by “The Commandant”.
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Erasmus : Fibromyalgia is a widely known but little understood condition or syndrome. There are no blood tests to confirm the presence or absence of the condition. It is often diagnosed when Rheumatologists ( a medical specialist), cannot confirm the presence of a classical autoimmune disorder such as SLE (Lupus) or Rheumatoid, (also known as Connective Tissue diseases), but when there is obviously something wrong with the patient. The significance of symptoms of fibromyalgia under the Paill Spectrum model is discussed.
Typical symptoms of fibromyalgia include: Pain in muscles and tendons,tiredness, chronic fatigue and being tired after exercise. The Paill Spectrum model of the Fibromyalgia Syndrome would add symptoms such as sweaty hands, dizziness, or loss of balance, depression and memory loss. Prolonged tiredness after exercise is a characteristic Paill Spectrum symptom.
Erasmus :Most doctors have heard of the Fibromyalgia syndrome but would have little knowledge of how to diagnose or treat the condition. In fact many doctors would doubt that the syndrome even exists. The Paill Spectrum model offers a new approach to treatment of Fibromyalgia that does not involved steroids or cytotoxic medications such as Methotrexate. The Paill Spectrum model suggests that blood tests can indeed be used to diagnose and treat the condition.
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Erasmus : Kinkajou: DR Xxxxx : Dr AXxxxx Goo: : :Beethoven and Frobisher Beethoven, The Commandant and Frobisher
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